• Breaking the silence, the road to victory

VICTORY CHEST

~ Memories of my husband lost too soon to cancer and life with our amazing daughters

VICTORY CHEST

Tag Archives: David

Tell me stories about Daddy

18 Tuesday Mar 2014

Posted by Victory Chest in Road to victory

≈ 5 Comments

Tags

children, David, memories, Missing you, stories

_MG_5438It was no surprise that Monday evening ended even crappier than the morning.  As we started homework my older daughter was already getting sad even my younger daughter recognized it and tried to make her happy.

By bedtime she broke down crying, she cried and talked about how much she missed her Dad.  She wondered why he did not get better, why he had to die now, why did he not die when she was older. She asked why she could not see him ever again. She looked out the window hoping she would find a shooting star so that she could wish for him to come back. She cried a lot, we cried a lot, I have had the same questions often.

As she started to settle down a bit she said that when she grows up, she wishes to find someone just like her Daddy.  WOW…I was again dumbfounded because while I know I cannot wish David back, I can truly wish the same for both girls because I know how lucky I was to have David.

I started telling her stories about her Dad.  She laugh hysterically as I told her how David used to dress her up and confuse the front and back of her dresses saying that men clothes are so much easier because the buttons are always in the front. How he used to wonder why girls had to wear tights and lifted her with tights to ensure that it fit just right (this is something we still do). I told her how he used to appeal to me to stop trying to feed her puree baby food such as tender beef spinach which were completely void of taste and asked that I feed her what we could eat. We laugh about so many things and she concluded that “Daddy is silly”.

I tried to assure her that even though Daddy is gone I will continue to do my best to make her happy. She asked that I should not talk about her Dad being gone but rather I should tell her more stories about him to make her laugh.

The best part of the evening was while we were laughing about the story, she said that “I actually forget that Daddy was gone, and for a minute I thought that Daddy was here”.

Breaking the silence – the compassionate Doctors

13 Thursday Mar 2014

Posted by Victory Chest in Breaking the silence

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Tags

bladder cancer, David, Doctors, memorial sloan kettering, oncologist

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Interactions with Doctors, their staff, and hospitals became a routine in our lives.  I recalled one week between David’s illness and my pregnancy we visited 4 hospitals in one week for various tests/appointments. Our experience in dealing with so many Doctors definitely shed light on the different types of doctors. I categorize them into those that were truly compassionate, those that viewed themselves with too much self regard, and those that were driven by the dollars.

The most compassionate doctor David had was his first Oncologist. You could tell that he really wanted to do the best to ensure David beat the disease. David was in the hospital when the reoccurrence was confirmed.  He came to inform us of the extent of the spread of the disease, You could see the sadness in his eyes as he talked. While he did not over promise he was committed to ensuring we started with the next course of the treatment that may offer some relief/hope.

He facilitated the transition of care to Memorial Sloan Kettering and worked closely with the Doctors there and also tried to assist in helping us get an appointment as fast as possible. Even when David was no longer under his care, he called David often to check on his progress, ensured he reviewed every scan results, provided further guidance. When Sloan Kettering said watch and wait, knowing how determined we were, he pointed us in directions of others that may have alternative considerations not available in his hospital.

I recalled David asking him to promise he will help ensure that David would be around to walk his daughters down the aisle and grudgingly he said he promised but you could tell that he did not fully believe it but wanted to be hopeful for our sake.

The last time he called was in December, he called me after trying David’s phone to no avail. I informed him that David was under hospice care. He was compassionately apologetic, it was as if it was a personal defeat for him. His sympathy was genuine, he standout above the rest.

Another Doctor that is noteworthy is David’s anesthesia pain Doctor, he was responsible for managing the intrathecal pain pump. The IT pump was what provided David the best control for his pain. This doctor was readily available despite a very busy schedule whenever I called to report increase pain, they promptly gave us an appointment and he adjusted the medication accordingly. I am truly grateful to him and the staff in his office for all they did to accommodate David’s needs and control the pain.

One other Doctor sticks out since he tried his best to help relieve some of the swelling in his leg.  While David’s second Oncologist was dismissive, this Doctor at least gave it his best shot by attempting to stent one of the key veins that was causing blockage. While it was not successful, I was grateful that he tried, we were fully aware that it may not work. Of course, we were completely saddened that it did not work, he was so compassionate as he saw me breakdown hysterically.  In fact, I am afraid he may have regretted trying, to the extent that if he sees another patient with a similar profile he may avoid trying to avoid the devastation. He had empathy because sadly he had lost his brother to cancer.

This is one of several posts that details our experience with bladder cancer. A concise summary of the overall experience can be found in the blog post titled “breaking the silence”.

How can you be gone?

02 Sunday Mar 2014

Posted by Victory Chest in Cancer Sucks

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Tags

cancer sucks, crying, David, grief, Missing you

Seriously, how am I suppose to live without you? How can I really live without you? You were everything for me. You balanced me, you were my go to person, bad day – David will fix it, silly question – David will answer it, frustrated – David will bear the brunt of it.

When you went on business trips, we used to joke about how I barely managed to hold things down for a few days without falling apart. Now how am I suppose to hold things together for years, decades?  It has been a month since you have been gone,  it has been horrid. How can I manage for a year?

Seriously, how do I live without you? I do not know how, I have spent ALL my adult life with you. Where do I go now? How do I move on?  How can you be gone forever? NO

This is not fair…..i feel broken. I am broken. I miss you. I need you.

I am ANGRY

22 Saturday Feb 2014

Posted by Victory Chest in Road to victory

≈ 10 Comments

Tags

David, funeral

Today I am angry….

I am angry that I have to plan my husband’s funeral.

I am angry that I wrote a tribute to David instead of a birthday card or anniversary card.

I am angry that my daughters were also involved in writing tributes as were family and friends.

I am angry about talking about David in past sentence.

I am angry that I am seeing those closest and dearest to me under this circumstance.

I am angry that I talked to chaplains, pastors, funeral home directors in the context of David’s burial.

Most of all, I am angy that I have to see a casket with David’s body.

I am angry, I am very angry.

In all my anger, I am ever so grateful for all the love and support from my family and friends, it has been immeasurably abundant. You guys truly provide hope in the future.

Key life change

19 Wednesday Feb 2014

Posted by Victory Chest in Road to victory

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benefit changes, David

Today, I called the benefit department at my office today to inform them of David’s passing. Somehow I remembered that they should be informed within 31 days of any key change in your life, perhaps it is because I have made changes with the birth of each of our children and also after getting married.  This change however is definitely an unwanted key life change.  

It was so hard listening to the lady tell me she has removed David from our health, dental, and vision benefit plan. This made me sad, in fact I was not even sure why I made the call. I felt like I was having to let go a part of David, I want to undo the conversation and just keep him on the benefit plan like nothing has changed.

My David, my love

14 Friday Feb 2014

Posted by Victory Chest in David, Road to victory

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Tags

David, love, valentine day

IMG_3623

David, you showed me such deep love, one that seemed reserved for fairy tales. You also let me know the importance of expressing love. Your love came without constraints. Your love was endless, it came simply and naturally, and you expressed it daily.

You believed that people should not wait for valentine’s day to show appreciation to their loved ones. However, this did not stop you from celebrating the day in its true tradition. You got sweet mushy cards, paid the inflated prices for flowers, bought chocolates and/or gifts etc.

It was hard for valentine’s day to feel more special than most days, expression and appreciation of love was something you did regularly. Today, I do not feel a void because it is valentine’s day, there are endless cards from you to smile and cry over. I feel a void because I miss the love of my life.

Love always,

XOXOXO

Missing you so much

11 Tuesday Feb 2014

Posted by Victory Chest in David, Road to victory

≈ 1 Comment

Tags

children, David, Missing you

David, we are all missing you terribly.  I know you know that since I know how much you love your girls.

As I approached my older daughter who was watching a show in the living room, I  noticed that a picture was missing from the frame behind her and she had placed it next to her. I asked why she took down the picture and she stated the expected “because I miss my Daddy”.

Saying we miss David terribly is an understatement, I cannot find the words to express my feeling of loss. My older daughter expressed her feeling of his loss by saying that “I wish my Daddy could just take me into his world”.  This simply reflected her desire to be close to her Dad and I told her that this world needs her sparkly, happy go lucky self.

To revise her statement to better suit our needs, I just wish David could come back to our world. It is just not the same without you, we miss you so much 😦

Below is the picture that she was holding.

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“I will not let you fall”

10 Monday Feb 2014

Posted by Victory Chest in David, Road to victory

≈ 8 Comments

Tags

David, falling, skating

My older daughter asked me yesterday, how exactly I met her Dad and I reminded her that it was at a roller skating rink.

I remember that day vividly, almost two decades ago on July 13. I went to the rink with some of my friends. David was in town on assignment. As an avid skater, he opted to go staking that night….

I skated around the rink once and I realized that years of not skating had made me develop a fear of falling. I proceeded to call it a night and have a seat. And there he was asking why I was leaving the rink. I explained that I was done, persistently he asked why? Innocently, I said I did not want to fall. He responded, “I will not let you fall“. We skated the night away and he kept me from thinking of falling by talking to me and holding my hands.

David was committed to this phrase throughout our relationship, he said it often and through thick and thin, he never let me fall. How I wish he was here now because I do not want to fall.

Memories of David – from Ron

07 Friday Feb 2014

Posted by Victory Chest in David, Road to victory

≈ 2 Comments

Tags

David, Friends

IMG_3281

As we try to come to terms with the loss of David, I find comfort in hearing from friends and family about different memories of David.  Here is one that came in as a blog comment from Ron, a very good friend of the family. Indeed, we have many memories especially of the time we spent as neighbors. In my post on Super Children, his daughter was the one who asked if it will be ok to share their Dad with my children.

It was sunny, about 80 degrees on a perfect Saturday. I was on my driveway working hard to assemble my daughters new Cozy Coupe. Bright red, cool yellow top and just few parts parts. Should be easy right? I was out there for hours trying to fit what seemed like a square peg in a round hole. Sweat pouring down my face, expletives being muttered under my breath…

When all of a sudden, out of nowhere comes David walking up to me. “Hey, need a hand with that? Been watching you out my window for a while and it looks like you could use some help with your project.” I said sure (I was so glad to see him…he might as well have been a Fisher Price Engineer). Before I had a chance to ask where his tools were the Cozy Coupe was upright on all four wheels and ready to roll.

This is not a story about how inept I am at putting toys together (he would laugh at that). Instead it’s just a quick story that shows what kind of man David was. Always willing to lend a hand, so caring and loving.

When I think of David I think of that day — picturing him laughing at me from his window across the street…it makes me smile. Keep watching good friend. We will miss you dearly.

Ron and family

Below is a picture of David assembling the same car with our older daughter.

image_2

Sweet Dreams of David

06 Thursday Feb 2014

Posted by Victory Chest in Road to victory

≈ 1 Comment

Tags

children, David, Dream

IMG_2338In the last two days, the girls have said something about David as soon as they wake up reflecting their state of mind.

When my younger daughter woke up two days ago, the first thing she said was “I want my Daddy”.  I was taken aback by this because while that is a common phrase, it is usually used in the evening when she is resisting bedtime and wants her Dad to plead for her or when she and her Sister are playfully competing for his attention. Perhaps she was having some sweet dreams which was interrupted when she woke up.

The next day as soon as my older daughter woke up with the brightest smile on her face, she said “Mommy, I had the best dream of my life”.  She explained that she saw her Daddy and her Grandpa (David’s Dad also deceased) and that she and her Sister ran over to Daddy and gave him a hug. From the excitement in her voice, I knew that the dream brought so much joy to her and it helped her feel a closeness to her Dad, her hero.

I have not yet had any dreams of David, it may be due to my lack of sleep, I am sure they will come in time. However, I am afraid that such dreams will bring sadness when I wake up since it will be reminder that it was only a dream and I no longer have David to touch and to hold.

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