• Breaking the silence, the road to victory

VICTORY CHEST

~ Memories of my husband lost too soon to cancer and life with our amazing daughters

VICTORY CHEST

Monthly Archives: January 2015

In remembrance

29 Thursday Jan 2015

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in memory, Remembrance

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David, your candle burned out long before your legacy ever will. You are remembered on this day and always. Beloved husband, father, son, and friend. We miss you dearly.

Please share any memories of David you have. I want to keep his memory alive to share with my daughters who find it so comforting when I tell them stories about Daddy.

Breaking the silence: the last day

28 Wednesday Jan 2015

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thelastbreath

January 29, 2014 was the day my dearest husband took his last breath. A life cut short due to cancer. He was freed from the illness after a great and determined fight. My heart broken.

I remember leaving the house that morning carrying my younger daughter and we both said “Bye Daddy/David” a routine message as I left for work and took her to school. I knew death was looming but could never have prepared for it.

I remembered getting to work that day and putting great energy in my work. Had some meetings and also a few causal conversation with co-workers. As I completed a meeting, I got an email from my older daughter’s principal because she was concerned that my older daughter had casually mentioned to her teacher that her Dad was very sick.

At the beginning of the school year, I informed the principal that David was ill.  However, I did not share the full extent of his illness, also David’s health continued to deteriorate. I called the principal and explained that David was very sick and under hospice care. The support she offered was remarkable.

During the call with the Principal, my Mom called me. I called her back and she said that David was asking for me and I should come home. I did not believe this so I asked what exactly was going. The hospice care nurse was at the house for her routine visit so I asked to talk to her. The nurse informed me that David’s blood pressure was very low. I asked her to quantify, it was 40/20. I knew what this meant.

Calmly, I gathered my belonging and left the office. I called my Sister who was already clued in and causally and sarcastically said to her “I am leaving my office a married woman and would return a widow (a word I hate).

I had an overall sense of calmness as I drove home.  My only hope was that David would be alive when I get home. From the look on everyone’s face when I walked in the door, I knew he was gone. Still, I asked, is he still breathing? They shook their heads.

I yelled at his body, “why didn’t you wait for me”? And immediately, I realized that I did not mean that. I did not need to see my dear husband take his last breath. The nurse and the home care aide (who was also there for her routine visit) said they believe David felt the same way and knew I was on the way home. Knowing him, this makes sense. He probably felt like there was nothing charming about me watching him die and he would have done anything to prevent that.

Then, I looked at my Mom and asked if he was comfortable. She said he was, he passed away peacefully as my Mom (God bless her) prayed with him.

That was it, David was gone forever. I touched him, his body was still warm. He looked peaceful like he was in a deep sleep. Then I realized it was no longer David, since the essence of David has left the body. It was now a body, one that was stricken by cancer and needed to be moved before my daughters came home from school. David and his essence  would live on in me and in our children.

Soon after I arrived home my Sister also came to the house. Much of the rest of the day is vague. I remember watching the video from our wedding, telling my daughters that “Daddy died” (the hardest thing I had to do) and talking to David’s Mom and my brothers.

It felt like my world was collapsing. I could not let this be, I needed to be stronger. For me, for David, and for my children. That night, I could not sleep, neither could my Mom or Sister. Between the tears, the name of the blog, Victory Chest emerged (thanks Sis). I was determined not to lose sight of the family David and I had worked so hard to build.

This is one of several posts that details our experience with bladder cancer. A concise summary of the overall experience can be found in the blog post titled “breaking the silence”.

Going through the emotions

27 Tuesday Jan 2015

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emptiness

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The tears have been more frequent lately, it just keeps coming. I know it has worsened as I anticipate the one year mark since David died. I do not think of the date as an anniversary because to me an anniversary is something for celebration. There is nothing to celebrate about that day. I mourn at the thought of the date and as the day  approaches I feel even more agitated.

Some have asked what I am doing on that day. I have no plans. I just want to be able to get through it. I will take the day off work. I am afraid I will relive all the emotions and the sadness it has brought to our lives. Perhaps, I will be unconventional and indulge in some retail therapy but I am not sure how that will help.

David, how could you be gone for a year?  A whole year without your voice. And to think this is just the beginning of my life without you. Your children have gone a whole year without you. David, how can you be gone? How can our lives be without you? My heartaches, I feel clueless and many times without direction. I do not even know how to mark a year of your passing. I just feel sorrowful and don’t know what to do.

To summarize the first year, it was empty. Empty because no matter what we did over the last year, there was always an emptiness and everything seems incomplete with David.

The day I decided to start writing

26 Monday Jan 2015

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breaking the silence, writing

My first notes

My first writing

The picture above is from my first writing. I started writing a few days before David died. It was the first time I documented my thoughts. I knew that the end was closer, my world was caving in on me. I could not escape it, I could not stop it. Yet almost everyone else in my life had no clue what we were dealing with. How could I have bottled so much for so long? I needed an outlet to express what we had gone through and the journey ahead.

The first time I wrote was the Sunday before David died. On that day, I woke up with a very unusual sickness. No clear reason for the illness, no fever but rather I was extremely fatigued with total body weakness. Luckily, my Mom was around to watch the girls and help David.

I wondered what was happening to me. Surely this was not the time to be sick, but somehow my body had turned against me. I could not get out of bed all day but later in the day I managed to write how I was feeling.

The notes were never part of the blog, I started the blog two days after David died and it has been a good outlet for me. While I write more freely on the blog, I still struggle with discussing my emotions in real life. The details of what I wrote that Sunday is shown below:

Today I could not get out of bed

I felt sick like never before- nausea , stomach cramp and extreme fatigue

Eventually vomiting bile since my stomach was empty

I lay here wondering what is wrong, wondering if there is a psychological element. One that may have overwhelmed me into my physical well being. 

For the first time I wondered if could be depressed and what depression felt like i.e. to what extend can it manifest physically. After much consideration I think, it may be more of the anxiety of the unknown and what the future holds that may be affecting me. 

I was saddened by my sickness, knowing how much my darling David has endured day to day for years as he battled with cancer. My Airman, thanks for putting on the good fight. Your fortitude is greatly appreciated. 

#understanding impact of emotional well being on the physical health

 

The elusive sleep

23 Friday Jan 2015

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breaking the silence, cancer, lack of sleep, pregnancy, sleep

I often say I have not really had a good night sleep since I was pregnant with our first child. At that time, the lack of sleep was a result of the discomfort I felt during pregnancy and the subsequent adjustment to life with a baby.

As I write this I remembered being so exhausted from extreme lack of sleep when we had our first child. I asked David if people can die from lack of sleep. He said no, not directly because the body will simply shut down and sleep would come regardless of how hard someone tries to stay awake. I have however learned that falling asleep and staying asleep are quite distinct since generally I can fall asleep.

By the time our older daughter became a better sleeper, we were already expecting our second child so the absence of sleep persisted. And when our younger daughter was a better sleeper, the toll cancer was taking on David made it difficult for us to get a restful sleep. For him, it was primarily the pain and need to administer medication. For me, it was trying to help him get through the pain or helping with the medication. Additionally, there was the emotional toll that kept me awake.

His death, compounded my inability to sleep with the extreme emotional anguish and the uncertainty of everything. After over 6 years of not getting a good night sleep, I realized that it would take a while to train my body to sleep properly. At some point last year, my sleep improved, however, it was still not what a good night sleep should be. Lately, I have been finding it difficult to have a restful sleep. This is no surprise given how I have been feeling. I hope that as time goes by my sleep pattern will improve again.

The first year without….

15 Thursday Jan 2015

Posted by Victory Chest in Road to victory

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grief, Missing you

I am in a daze, I feel like I do not have a plan and at a complete loss. I wanted to start the year with great hope and optimism but that feeling has been short lived.

The beginning of the year is now a sad reminder that I have to go through all the same things I went through last year all over again. Dates to remind us of the one year mark of my David’s death, his funeral, his birthday, our anniversary, and our birthdays without him.

I know there is a notion that the first year is the most difficult. I also believe in reality that subsequent next years could be just as difficult. I spent the first year in survival mode. A mode that is probably not sustainable for subsequent years and frankly unrealistic. I indulged the girls and myself trying to mask the grief when possible.

I am not ready to change whatever helps keep us functioning but I do not know what is sustainable long term. I have no idea how I would get through 2015. How can I summon the energy to go through all the pain and emotions of losing David all over again, everyday? It is a very overwhelming thought and I try to keep my sanity by telling myself to “take things one day at a time”.

This month may also be especially difficult and depressing because it is the month that marks one year since my dear husband died. The thought of this makes me feel depleted and defeated. How could I have gone a year without David. How am I suppose to go every single year without you?

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