• Breaking the silence, the road to victory

VICTORY CHEST

~ Memories of my husband lost too soon to cancer and life with our amazing daughters

VICTORY CHEST

Monthly Archives: March 2014

The awkwardness of death in real life

14 Friday Mar 2014

Posted by Victory Chest in Road to victory

≈ 7 Comments

Tags

condolence, coworkers, death, work

It has been almost two weeks since I returned to work and truly, it has been the right decision. I am so thankful for the support of many of the individuals at work. Returning to work has also revealed to me some of the awkwardness of my new reality especially when people see me for the first time.

Many offered their condolences and showed genuine interest in the well being of me and my daughters.  Others simply pretended like nothing happened at all and proceeded to having work related discussions. There is another group that have avoided me like a plague, they see me coming down the hallway and change directions or try to remain so focused on something like they never saw me.

I am most grateful to those that have asked about me or expressed their condolences regarding David’s passing. Many have gone way above what I can even imagine in the extent of the support they have offered.

The strangest are those that simply pretend like nothing happened. I find those situation to be the most peculiar but perhaps it speaks to the awkwardness of death. But death is something I now have to confront daily. Understandably, it is an undesired life change. If I had gone back to work after getting married or having a baby most of these people would have been fine to acknowledge that and offer their congratulatory messages.

As for those that have avoided me, if/when our paths cross will determine which of the other two categories they fall into.

Below is selfie of me and my older daughter on my first day back to work. I was determined to make sure I did not look crazy, I know David never let me leave the house looking crazy.

photo

Breaking the silence – the compassionate Doctors

13 Thursday Mar 2014

Posted by Victory Chest in Breaking the silence

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Tags

bladder cancer, David, Doctors, memorial sloan kettering, oncologist

dr_img

Interactions with Doctors, their staff, and hospitals became a routine in our lives.  I recalled one week between David’s illness and my pregnancy we visited 4 hospitals in one week for various tests/appointments. Our experience in dealing with so many Doctors definitely shed light on the different types of doctors. I categorize them into those that were truly compassionate, those that viewed themselves with too much self regard, and those that were driven by the dollars.

The most compassionate doctor David had was his first Oncologist. You could tell that he really wanted to do the best to ensure David beat the disease. David was in the hospital when the reoccurrence was confirmed.  He came to inform us of the extent of the spread of the disease, You could see the sadness in his eyes as he talked. While he did not over promise he was committed to ensuring we started with the next course of the treatment that may offer some relief/hope.

He facilitated the transition of care to Memorial Sloan Kettering and worked closely with the Doctors there and also tried to assist in helping us get an appointment as fast as possible. Even when David was no longer under his care, he called David often to check on his progress, ensured he reviewed every scan results, provided further guidance. When Sloan Kettering said watch and wait, knowing how determined we were, he pointed us in directions of others that may have alternative considerations not available in his hospital.

I recalled David asking him to promise he will help ensure that David would be around to walk his daughters down the aisle and grudgingly he said he promised but you could tell that he did not fully believe it but wanted to be hopeful for our sake.

The last time he called was in December, he called me after trying David’s phone to no avail. I informed him that David was under hospice care. He was compassionately apologetic, it was as if it was a personal defeat for him. His sympathy was genuine, he standout above the rest.

Another Doctor that is noteworthy is David’s anesthesia pain Doctor, he was responsible for managing the intrathecal pain pump. The IT pump was what provided David the best control for his pain. This doctor was readily available despite a very busy schedule whenever I called to report increase pain, they promptly gave us an appointment and he adjusted the medication accordingly. I am truly grateful to him and the staff in his office for all they did to accommodate David’s needs and control the pain.

One other Doctor sticks out since he tried his best to help relieve some of the swelling in his leg.  While David’s second Oncologist was dismissive, this Doctor at least gave it his best shot by attempting to stent one of the key veins that was causing blockage. While it was not successful, I was grateful that he tried, we were fully aware that it may not work. Of course, we were completely saddened that it did not work, he was so compassionate as he saw me breakdown hysterically.  In fact, I am afraid he may have regretted trying, to the extent that if he sees another patient with a similar profile he may avoid trying to avoid the devastation. He had empathy because sadly he had lost his brother to cancer.

This is one of several posts that details our experience with bladder cancer. A concise summary of the overall experience can be found in the blog post titled “breaking the silence”.

Too bad you are not Daddy

11 Tuesday Mar 2014

Posted by Victory Chest in Road to victory

≈ 3 Comments

Tags

children, crying, grief, Missing you

As we brought out the pieces of the “Marker maker” one of the additions to the girls collection for art and craft, I looked a bit overwhelming.  My older daughter looked at me and she knew exactly what was on my mind and said “we have to build it, too bad you are not Daddy”. She was right.  There were so many pieces, where do I start? David will have figured it out immediately. Thanks to youtube, I watched a video and voilà we were making makers.

It breaks my heart knowing I can never fill that void for my children. My daughter now attributes most things that upset her to the absence of her Dad.  She cries every night, she is sensitive about most things, runs to her room at the smallest things and cries passionately for Daddy, she says she wants her old life back, I do too.

Shopping as a distraction

11 Tuesday Mar 2014

Posted by Victory Chest in Random

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Tags

grief, shopping

mzpic

In an attempt to distract myself from the gloominess in my life after David went into hospice care, I shopped, shopped and shopped.  The shopping was done almost exclusively online. Once I clicked send, I started looking forward to the arrival of the items. Unfortunately, as each package arrived once I looked through the items there was always a sense of disappointment, I wondered why I even ordered the items or what made me eagerly await its arrival. It brought no relief in fact, I felt more emptiness and sadness plus I was overwhelmed with the thoughts of processing the returns or flattening the boxes for recycling.

As I think back, I am reminded that I went through a similar process after my Dad passed away, I will go to the mall and shop around hoping that a new item will help bring a little bit of cheer.

I am relieved to say that I was quick to curb this habit, it simply is not easing the pain from my grief.

UPDATE: so maybe shopping can bring a little bit of cheer.

The joy in art

09 Sunday Mar 2014

Posted by Victory Chest in Road to victory

≈ 1 Comment

Tags

art, children, drawing, painting

draw_img

It is no surprise that my daughters are missing their Dad, in fact they miss him more and more each day.  I am in frequent communication with my daughter’s school teacher and school counselor. I am also trying to be more present in her school activities. I joined her for lunch on Friday afternoon and this really brightened her day.

In order to try to provide the best support at home, I asked my older daughter what helps her feel better when she is sad and she said she likes drawing.  This is no surprise, they both like drawing or scribbling. Following a play date, the older one tends to draw something for her friends as a parting gift. In fact, she did the same for me after I met her for lunch at school.

I asked what products she wanted to further enable her interest and drawing and thanks to Crayola and Amazon they were ordered.  We spent a good bit of the weekend drawing and painting. My daughter even said it was better than watching TV or the iPad.

I recall when David started chemo the first time, walking down the hallways of the chemo suite, I noticed lots of drawings on display, it was there because it was perceived as therapeutic.  At that stage in our lives, I did not even want to look at them, not because I did not appreciate art but because I was afraid that people were drawing to remember a loved one, something I feared dearly.

I can say drawing with the girls this weekend was fun and hopefully therapeutic for all of us.

Breaking the silence – Hospice care

08 Saturday Mar 2014

Posted by Victory Chest in Breaking the silence

≈ 1 Comment

Tags

bladder cancer, cancer sucks, dying, end stage disease, hospice care

The transition to hospice care changed everything since hospice care is essentially aimed at providing comfort and support until the imminent death NOT providing treatment to prevent death. It was the beginning of the end.

The day David began hospice care was the first time we talked about dying and it was the last time. We cried a lot and abruptly ended the conversation. David’s desire was to stay home and this was my desire as well. My Mom staying with us also made this possible, knowing that he was getting the best care and love. I continued to work, continued to maintain a normal routine for the girls. Unless you were in our house, nobody knew the extent of what we were dealing with.

The move to hospice made me angrier. The grieving began, I cried often when I thought I could not be seen or heard.  I became more open with my daughter letting her know Daddy was not going to get better as we were all hoping.

I found it hard to be grateful to any of the staff from the hospice care team.  The end goal of hospice was contrary to my heart’s desire. I was angry each time I saw them for sure they have the wrong house.  In my view, they brought their dirty feet into our home, I wondered what house they were coming from, bringing the germs and illness of a truly sick person’s house into our home.  They just did not belong in our house.  I tried to ensure that I was out of the house before they arrived and returned after the left.

My emotions in no way reflect the good work of hospice staff. They were understanding, did everything to ensure David was comfortable, responded to any need with prompt attention. At the end, they were there with sincere sympathy and support to try to ease the pain of dealing with David’s passing.

This is one of several posts that details our experience with bladder cancer. A concise summary of the overall experience can be found in the blog post titled “breaking the silence”.

Seriously….jury duty

07 Friday Mar 2014

Posted by Victory Chest in Random

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Tags

jury duty, justice

img_JD

Could they have picked a worse time?  As much as this is our duty to country, part of how we preserve the integrity of the legal system in America, this is NOT the time for me to serve this civic duty.

I know for certain that my decisions will be based on emotions which have been erratic lately rather than facts, evidence, or the pursuit for justice. Depending on the case, I think I will either be unreasonably merciful or unbelievable brutal in serving what is my irrational perspective of justice.

So, in the need to protect the integrity of the legal system, I will complete the form and hope to have provided a good enough reason to be excluded from the invitation to jury duty.

UPDATE: I was excused from jury duty, they responded almost immediately.

Good days, bad days

06 Thursday Mar 2014

Posted by Victory Chest in Road to victory

≈ 3 Comments

Tags

bad days, crying, good days, grief

There is no logic to predicting which days will be bad or good for me. Some mornings, I wake up just knowing it is a crappy day. However, most days, I wake up with no clue how the day will turn out.

Yesterday, I woke up indifferent, got ready for worked, dropped my daughter at school and when I was less than a minute from work, the uncontrollable tears began. I continued to cry in parking lot then took time to recompose myself.  Once I thought I was ok, I proceeded to the office, suddenly, the tears started streaming down my face. Imagine the horror when I ran into a co-worker…oh no….no one is suppose to see me crying definitely not at work and there I was still crying uncontrollably. Eventually, I made it to my office and finally the tears stop and I proceeded my work day.

Today, was different, it was a better day, in fact I refer to it as a good day. Like yesterday, I woke up indifferent but managed to drive to work without crying, sang along to some songs on the radio, and maintained a decent demeanor for the rest of the day.

What makes some days better than others remains unclear. I wish I knew what sets me off some days and what keeps me calmer on other days. I am just relieved that today was better than yesterday.

Breaking the silence – dealing with end stage of cancer

04 Tuesday Mar 2014

Posted by Victory Chest in Breaking the silence, Cancer Sucks

≈ 2 Comments

Tags

bladder cancer, cancer sucks, end stage disease, hospice care

After the cancer reoccurred less than 6 months after completing intense chemotherapy treatment, David and I knew the odds were against us but this made us more determined to fight harder. David put up a great fight for his life. We were so caught up in the fight and finding the right treatment that I refused to be distracted by thinking that this ugly disease will lead to the end.

I could not accept David’s death as an option, I was not interested in discussing it. This was my coping mechanism since I could only function by believing David would live. Resiliently, we kept fighting for victory over cancer.

This changed in November 2013, it was not because I decided to listen to another Doctor of gloom, or over analyze yet another CT scan result.  It was because despite the treatments, the disease continued to take a toll on David’s health. His energy level was depleting, his pain progressed, fatigue increased, and he was less ambulatory.  It became very clear that the progression was irreversible, the treatments were ineffective and causing additional anguish to David.

For the first time, I allowed my self to start coming to terms with the inevitable, the unthinkable. I tried to numb my emotions. I became a different person, a person I that I did not know and one that I am quite sure I did not like. I asked the Lord to spare David from his pain and suffering to preserve his dignity and in David’s words “make it a quick death”. I felt guilty, like I was giving up on David, I became distant from the world.

I recall going on a business trip, it was an escape from my reality – interacting with colleagues like my life was normal. I felt like an impostor. I came back home to my reality, a sad one as I watched my husband deteriorate further. Later that week, I had to take David to the emergency room. Upon his discharge, I knew it was time to change from visiting nurse to in-home hospice care.

I felt defeated because the cancer seemed to be winning.  We are a winning family, we were suppose to win this battle, our biggest battle. How could we go from fighting so hard to accepting the end was near? My goal changed to ensuring that David was comfortable until the end.

David fought hard and was in hospice care at home for almost 2 months before he took his last breath. Those two months as the end approached were undoubtedly one of the worst phases of our life.

This is one of several posts that details our experience with bladder cancer. A concise summary of the overall experience can be found in the blog post titled “breaking the silence”.

Left work a married woman…..

03 Monday Mar 2014

Posted by Victory Chest in Road to victory

≈ 4 Comments

Tags

marital status, widowed, work

img_MS

The last time I left my office I was a married woman, today, I returned with the most unwanted status, a word I despise. I struggle to even type it..WIDOWED. The word makes me feel handicapped. While I can understand that David is gone, this is one status I am not embracing.

Some have asked why am I going back to work already. For me it is simple, why not. What will I do at home? It does not take away the pain. In fact the longer I stay home the more difficult it may be to re-adjust to the routine of work.

I dressed for work making sure I did not look like a hot mess. I tried to keep my head up like it was a normal day at work. This was short lived, as I started driving to work, I was reminded that I did not see David in this morning:

  • He did not insist on ironing an outfit that looked perfectly fine to me
  • He did not give me a thumbs up or thumbs down on my outfit
  • He did not keep informing me of the time to ensure that I wasn’t running late for work (this used to annoy me)
  • He did not say “I love you”
  • He will not be calling to find out how my day is going
  • I will not hear him say “Happy Monday” or “it is almost Friday” (even on Monday)
  • He will not be leaving any messages for me or sending me any emails
  • He will no longer drive me to work or pick the kids from school

All I have now are the memories and that just does not seem sufficient. I managed ok at work today, thanks to a pep talk from my dear friend and thanks to David who always told me “you can do anything”. I am also thankful to my co-workers for being so supportive.

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